Latest Updates

Hello ! Nolan's had a busy and productive week back at home with trips to the pool, Lego building, tutoring to catch him up on school,...

After 5 weeks at CHOP we were finally able to bring Nolan home this morning ! In the Seashore house rehab unit they have a send off...

Hello & Happy Monday ! Today we received good news following Nolan's third MRI Friday and lumbar puncture to test his spinal fluid. The...

Hello ! Nolan is settling in nicely to life at seashore house. As we were told before arriving his schedule is quite busy with PT, OT and...

Hello & Happy Father's Day! Nolan has finally made his move to the in patient rehab facility @ CHOP called Seashore house. We are happy...

As of Thursday, 06/15 we are proceeding with targeted cranial radiation treatment for Nolan which will begin next week. There is still...