Latest Updates

Hello! We hope you’ve had a nice holiday season and a happy new year. Following Nolan’s successful surgery in early December and continued recovery we head into 2026 filled with lots of hope. Next week Nolan will begin his clinical trial. Mostly oral medications with two infusions. The doctors informed us that Nolan’s tissue responded well to numerous medications tested against it impressing even the scientists. To say this gives us lots of hope along with relief is an under

We’ve spent the last 2.5 years grateful for clean scans and holding our breath for continued health.  Unfortunately toward the end of this past October we noticed Nolan experiencing some facial weakness.  We had a planned MRI on 11/03, while we hoped for the best we were shocked to find out a brain tumor had returned, this time in a different spot and wrapped around the facial and auditory nerves.  Our oncologist was optimistic letting us know that Dr. Storm could likely oper

Hello! We hope you have been having a great summer! Nolan has been enjoying camp this year, trips to the shore and time at the pool with...

Happy birthday to our hero Nolan!! Hard to believe he is 9! It's been a busy winter of indoor soccer, school and health. We thank you for...

We've realized it's been quite some time since we posted an update, we've been back in a more normal routine over here which has been...

We are so excited to share that thanks to the incredible generosity of our donors, Team Navigating Nolan has successfully raised $10,000...

This week Nolan and his brother Harry went back to school and are finally at the same school again! They had a great week and we are...

Hello! We are enjoying the last month of summer with some fun activities. We are so grateful to those that have set us up with some fun...

Today was Nolan's last day of radiation treatment and we couldn't have been more thrilled for him. We are so proud of how he handled all...

Hello! We are happy to report Nolan's got one week left of radiation! He's doing great with physical therapy and is enjoying the last...

Hello and happy Friday !! Not too many updates this week except that Nolan is now able to fully submerge and swim underwater which he was...

Hello! Another productive and great week for Nolan. Today he had his NG tube removed and is cleared to jump and run, still no contact...

Hello - we still have some spots left on our meal train which has been helpful to us as Nolan continues with radiaiton through early...

Hello ! Nolan's had a busy and productive week back at home with trips to the pool, Lego building, tutoring to catch him up on school,...

After 5 weeks at CHOP we were finally able to bring Nolan home this morning ! In the Seashore house rehab unit they have a send off...