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June 18th - Happy Father's Day & Move to Seashore House

Hello & Happy Father's Day! Nolan has finally made his move to the in patient rehab facility @ CHOP called Seashore house. We are happy that we are one step closer to bringing Nolan home.


Here are some photos and videos of his move and also his new Cheetos addiction supported by his Aunt Lisa hehehe.



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We’ve spent the last 2.5 years grateful for clean scans and holding our breath for continued health.  Unfortunately toward the end of this past October we noticed Nolan experiencing some facial weakne

 
 
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