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Homeward Bound

After 5 weeks at CHOP we were finally able to bring Nolan home this morning ! In the Seashore house rehab unit they have a send off parade and allow you to choose a song, Nolan selected "Born for This", apparently from a you tuber named Jstu.


We are very proud of Nolan and how far he's come since his surgery. The nurses, doctors, and helpers at CHOP were amazing, we will miss some of our favorites!


Now that we are home we will continue with proton therapy as outpatient and continue with weekly physical therapy.


Happy Fourth of July weekend !




 
 

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We’ve spent the last 2.5 years grateful for clean scans and holding our breath for continued health.  Unfortunately toward the end of this past October we noticed Nolan experiencing some facial weakne

 
 
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