We're On Nolan's Time
This post has been incredibly difficult to write, but it's a long time coming. You're likely aware that Nolan was admitted to CHOP on September 10 with new symptoms related to tumor growth. We had learned from his MRI scans in late June that his tumors had shrunk, and we were thrilled.
Nolan had a relatively typical summer while fighting delayed side effects from his CSI radiation. He attended his beloved Sunrise summer camp, thanks to the amazing and caring staff there. He spent time with friends, swam, and went to the shore.
In late August, we were able to take Nolan and Harry on a dream trip to Ireland and England. We ended our journey at a Liverpool FC game, Nolan's favorite Premier League team. We returned home in time for school, and Nolan was able to start middle school.
But just a few days into the school year, Nolan started showing new and increased symptoms. After arriving back at CHOP, Nolan had new scans, and we found out that his brain tumor had grown and was now in his brain stem.
Our options were limited, but we were planning to bring Nolan home. On the day we were supposed to go home, though, Nolan ended up in the ICU, and we have not been able to leave since.
There have been many ups and downs, along with tearful goodbyes, but Nolan is not quite ready to leave us yet.
As he told us many times throughout his fight with ependymoma, he is "Built Different."
We're on Nolan's time and working every day to make sure he's comfortable and knows how loved he is.
We are so thankful for the support of our community, family, and friends. We could not have gotten through this last month without you.
If you're looking for ways to support our family, a local foundation is hosting several fundraisers for us, including dine-and-donate nights and a 5K run, walk, or skip in early November. We have also appreciated gift cards for food delivery, coffee shops, Amazon, and Wawa for gas.
Our GoFundMe page can be found here as well.
Thank you again. We appreciate all the love, prayers, and support!
