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Today we are happy

Hello! Another productive and great week for Nolan. Today he had his NG tube removed and is cleared to jump and run, still no contact sports but that's ok from mom's perspective.

Nolan's got a little less than half of his allotted radiaiton treatments to go !


We also wanted to share some fun links:


Here's Nolan's Spotify playlist he listens to while in proton radiation treatment: https://open.spotify.com/playlist/1gfUrmVZi9vI2Gqu6DUnW6?si=TBficvEjTim9EObuLZm6qw


Here's a cool video with Nolan's neurosurgeon whose home was used as the house on servant (for anyone who watches that show!) https://6abc.com/chop-doctor-neurosurgeon-center-city-home-m-night-shyamalan/10502839/


And in case anyone needs the link - join our team or donate for the CHOP run and walk




 
 

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We’ve spent the last 2.5 years grateful for clean scans and holding our breath for continued health.  Unfortunately toward the end of this past October we noticed Nolan experiencing some facial weakne

 
 
IMG_2544.HEIC

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